PROGRAM REHABILITASI JANTUNG SEBAGAI UPAYA MENINGKATKAN KUALITAS HIDUP PASIEN PENYAKIT JANTUNG BAWAAN
Abstract
ABSTRAK
Pendahuluan: Penyakit Jantung Bawaan (PJB) merupakan kelainan bawaan yang paling banyak ditemukan di seluruh dunia, termasuk Indonesia. Saat ini pengobatan utama pasien PJB adalah bedah kardiotoraks terbuka. Namun, penerapannya di Indonesia masih mempunyai beberapa kendala karena beberapa hal yang menyebabkan angka harapan hidup pasien PJB di Indonesia diperkirakan tidak sebaik angka harapan hidup pasien PJB di negara maju. Selain berkaitan dengan angka harapan hidup, pasien PJB juga akan mengalami penurunan kualitas hidup, terutama jika tidak ditangani dengan baik. Program rehabilitasi jantung merupakan salah satu program yang bertujuan untuk mengatasi hal tersebut.
Pembahasan: Program rehabilitasi jantung dapat meningkatkan kualitas fisik dan psikososial serta memastikan perkembangan kognitif dan sosio-emosional pasien PJB tetap terjaga. Rehabilitasi jantung meliputi latihan fisik, penatalaksanaan psikososial, edukasi, modifikasi faktor risiko, dan penatalaksanaan gizi. Beberapa penelitian menunjukkan bahwa rehabilitasi jantung memiliki banyak manfaat dan aman bagi pasien PJB. Dalam pelaksanaannya, rehabilitasi jantung menghadapi beberapa tantangan khususnya pada rehabilitasi jantung berbasis pusat (CBCR), sehingga disarankan untuk meningkatkan rehabilitasi jantung berbasis rumah (HBCR) dengan tetap memastikan informasi mengenai HBCR disampaikan secara lengkap dan diterima dengan baik oleh pasien.
Simpulan: Berdasarkan tinjauan literatur ini, penulis menyarankan peningkatan pelaksanaan rehabilitasi jantung pada pasien PJB di seluruh Indonesia khususnya HBCR yang dapat dilakukan secara mandiri maupun komunitas untuk meningkatkan kualitas hidup pasien dalam jangka panjang.
Kata kunci: Penyakit jantung bawaan, rehabilitasi, kualitas hidup
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References
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7. Wu Y, Kuang H, Wang G, Dai J, Li Y, Wei G, et al. Surgical Management for Complete Atrioventricular Septal Defects: A Systematic Review and Meta-Analysis. Pediatr Cardiol [Internet]. 2020;41(7):1445–57. Available from: https://doi.org/10.1007/s00246-020-02397-w
8. Alphonso N, Angelini A, Barron DJ, Bellsham-Revell H, Blom NA, Brown K, et al. Guidelines for the management of neonates and infants with hypoplastic left heart syndrome: The European Association for Cardio-Thoracic Surgery (EACTS) and the Association for European Paediatric and Congenital Cardiology (AEPC) Hypoplastic Left Heart Sy. Eur J Cardio-thoracic Surg. 2020;58(3):416–99.
9. Vanderlaan RD, Barron DJ. Optimal Surgical Management of Tetralogy of Fallot. CJC Pediatr Congenit Hear Dis [Internet]. 2023;2(6):352–60. Available from: https://doi.org/10.1016/j.cjcpc.2023.09.003
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11. Mandalenakis Z, Giang KW, Eriksson P, Liden H, Synnergren M, Wåhlander H, et al. Survival in children with congenital heart disease: Have we reached a peak at 97%? J Am Heart Assoc. 2020;9(22).
12. Zühlke L, Lawrenson J, Comitis G, De Decker R, Brooks A, Fourie B, et al. Congenital Heart Disease in Low- and Lower-Middle–Income Countries: Current Status and New Opportunities. Curr Cardiol Rep. 2019;21(12).
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14. Reiner B, Oberhoffer R, Ewert P, Müller J. Quality of life in young people with congenital heart disease is better than expected. Arch Dis Child. 2019;104(2):124–8.
15. Dighero RA, Torres-Castro R, Rodríguez-Núñez I, Rosales-Fuentes J, Vilaró J, Fregonezi G, et al. Physical activity assessments in children with congenital heart disease: A systematic review. Acta Paediatr Int J Paediatr. 2020;109(12):2479–90.
16. Amedro P, Gavotto A, Legendre A, Lavastre K, Bredy C, De La Villeon G, et al. Impact of a centre and home-based cardiac rehabilitation program on the quality of life of teenagers and young adults with congenital heart disease: the QUALI-REHAB study rationale, design and methods. Int J Cardiol. 2019;283:112–8.
17. Gauthier N, Curran T, O’Neill JA, Alexander ME, Rhodes J. Establishing a Comprehensive Pediatric Cardiac Fitness and Rehabilitation Program for Congenital Heart Disease. Pediatr Cardiol [Internet]. 2020;41(8):1569–79. Available from: https://doi.org/10.1007/s00246-020-02413-z
18. Dissel AC van, Blok IM, Hooglugt JLQ, de Haan FH, Jørstad HT, Mulder BJM, et al. Safety and effectiveness of home-based, self-selected exercise training in symptomatic adults with congenital heart disease: A prospective, randomised, controlled trial. Int J Cardiol [Internet]. 2019;278:59–64. Available from: https://www.sciencedirect.com/science/article/pii/S0167527318356377
19. Meyer M, Brudy L, García-Cuenllas L, Hager A, Ewert P, Oberhoffer R, et al. Current state of home-based exercise interventions in patients with congenital heart disease: a systematic review. Heart. 2019;106(5):333–41.
20. PERKI. Panduan Rehabilitasi Kardiovaskular. Indones Hear Assoc. 2019;1.
21. Saripudin NF, Emaliyawati E, Somantri I. Hambatan Pasien Penyakit Jantung Koroner (PJK) untuk Menjalani Rehabilitasi Jantung. J Perawat Indones [Internet]. 2018 May 5;2(1):20. Available from: https://journal.ppnijateng.org/index.php/jpi/article/view/37
22. Astuti ID, Akbar MR, Nuraeni A. Intervensi Rehabilitasi Jantung Fase I pada Pasien yang Menjalani Operasi Bedah Pintas Koroner (BPK): Literatur Review. J Keperawatan Indones. 2019;22(2):110–21.
23. Lumi AP, Joseph VFF, Polii NCI. Rehabilitasi Jantung pada Pasien Gagal Jantung Kronik. J Biomedik. 2021;13(3):309.
24. Bellmann B, Lin T, Greissinger K, Rottner L, Rillig A, Zimmerling S. The Beneficial Effects of Cardiac Rehabilitation. Cardiol Ther [Internet]. 2020;9(1):35–44. Available from: https://doi.org/10.1007/s40119-020-00164-9
25. Akamagwuna U, Badaly D. Pediatric Cardiac Rehabilitation: a Review. Curr Phys Med Rehabil Reports. 2019;7(2):67–80.
26. Dold SK, Haas NA, Apitz C. Effects of Sports, Exercise Training, and Physical Activity in Children with Congenital Heart Disease—A Review of the Published Evidence. Children. 2023;10(2).
27. Spillmann R, Polentarutti S, Ehrler M, Kretschmar O, Wehrle FM, Latal B. Congenital heart disease in school-aged children: Cognition, education, and participation in leisure activities. Pediatr Res. 2023;94(4):1523–9.
28. Awosika A, Hillman AR, Millis RM, Adeniyi MJ. Cardiac Rehabilitation and Cardiopulmonary Fitness in Children and Young Adults With Congenital Heart Diseases: A Critically Appraised Topic. Cureus. 2022;14(11):1–7.
29. Sheng SP, Feinberg JL, Bostrom JA, Tang Y, Sweeney G, Pierre A, et al. Adherence and Exercise Capacity Improvements of Patients With Adult Congenital Heart Disease Participating in Cardiac Rehabilitation. J Am Heart Assoc. 2022;11(16).
30. Jacobsen RM, Beacher D, Beacher L, Earing MG, Ginde S, Bartz PJ, et al. The impact of and barriers to cardiac rehabilitation following cardiac surgery in the adult with congenital heart disease. J Cardiopulm Rehabil Prev. 2022;42(2):115–9.
31. Ilardi D, Sanz JH, Cassidy AR, Sananes R, Rollins CK, Ullman Shade C, et al. Neurodevelopmental evaluation for school-age children with congenital heart disease: Recommendations from the cardiac neurodevelopmental outcome collaborative. Cardiol Young. 2020;30(11):1623–36.
32. Fourdain S, Simard MN, Dagenais L, Materassi M, Doussau A, Goulet J, et al. Gross Motor Development of Children with Congenital Heart Disease Receiving Early Systematic Surveillance and Individualized Intervention: Brief Report. Dev Neurorehabil. 2021;24(1):56–62.
33. Mayuga KA, Fedorowski A, Ricci F, Gopinathannair R, Dukes JW, Gibbons C, et al. Sinus Tachycardia: A Multidisciplinary Expert Focused Review. Circ Arrhythmia Electrophysiol. 2022;15(9):E007960.
34. Leyenaar JK, Ralston SL, Shieh MS, Pekow PS, Mangione-Smith R, Lindenauer PK. Epidemiology of pediatric hospitalizations at general hospitals and freestanding children’s hospitals in the United States. J Hosp Med. 2016 Nov;11(11):743–9.
35. Santillanes G, Rose E. Evaluation and Management of Dehydration in Children. Emerg Med Clin North Am [Internet]. 2018 May;36(2):259–73. Available from: https://linkinghub.elsevier.com/retrieve/pii/S0733862717301396
36. Ardiana M. Buku Ajar Rehabilitasi Jantung pada Populasi Khusus. Penerbit NEM; 2021.
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Published
2024-11-17
How to Cite
DJUANDA, Louis Felix; ADIWATI, Erica Luis; PUTRI, Putu Khrisna Arsawardani.
PROGRAM REHABILITASI JANTUNG SEBAGAI UPAYA MENINGKATKAN KUALITAS HIDUP PASIEN PENYAKIT JANTUNG BAWAAN.
Essential: Essence of Scientific Medical Journal, [S.l.], v. 22, n. 1, p. 1 - 9, nov. 2024.
ISSN 2655-6472.
Available at: <https://ojs.unud.ac.id/index.php/essential/article/view/118023>. Date accessed: 09 jan. 2025.
doi: https://doi.org/10.24843/essential.v22i1.118023.
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Artikel Tinjauan Pustaka
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